Earlier this month the Presidential Commission for the Study of Bioethical Issues (the Commission) issued guidelines to address ethical and legal issues that arise as a result of whole genome sequencing. The Commission recognized that current U.S. governance and oversight of genomic data do not fully protect individuals from the risks associated with sharing their whole genome sequence data and information, which sharing is necessary to advance the technology and realize its full potential. This news release condenses the major recommendations from the Commission.
View the original article here: Privacy and Progress in Whole Genome Sequencing
