President’s Bioethics Commission Report on Genomics and Privacy

PresidentialSeal
The Presidential Commission for the Study of Bioethical Issues has just released a statement in which it recognizes that although inexpensive whole genome sequencing “holds enormous promise for human health and medicine,” there is “potential for misuse of this very personal data.”
 
It recommends that Congress should “protect individual privacy by prohibiting unauthorized whole genome sequencing without the consent of the individual from whom the sample came.” It also recommends that DNA should be handed over in legal cases only after informed consent has been obtained.
 
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