The following is an excerpt.
How do you explain to a child that he or she is battling a genetic condition? It’s simple. You explain it simply.
Dawn Laney, a genetic counselor, research coordinator and instructor in Emory University’s Department of Human Genetics, is also the author/co-author of three children’s books. She wrote the books to explain the genetic conditions Fabry disease, Mucopolysaccharidoses (MPS), and Pompe Disease to children in a way that they can easily relate to.
As a genetic counselor, Laney works closely with patients affected by lysosomal storage diseases, primarily Fabry disease. After diagnosing patients, Laney has to explain the test results and potential treatment options to patients and their families.
View the original article here: Talking to children about genetic conditions