New play takes on ‘informed consent’ issues in genetic studies

Play write Deborah Zoe Laufer learned she had four days to come up with a proposal for “a Sloan play,” an original work underwritten by the Ensemble Studio Theatre/Alfred P. Sloan Foundation Science & Technology Project.

The collaboration between the New York theater and the philanthropic organization is meant to inspire science-based plays that “challenge the existing stereotypes of scientists and engineers in the popular imagination.”

Beginning in 1990, members of the dwindling tribe living at the base of the Grand Canyon – a spectacular and isolated region accessible by horseback, hike or helicopter – began giving blood samples to researchers in the hope that they could discover the reasons behind the group’s deadly rate of diabetes.

When they learned that their DNA was being mined to study a series of other maladies – from alcoholism to schizophrenia – and migration patterns that flew in the face of the tribe’s creation myths and beliefs about its origins, they felt betrayed and took their complaints to court.

Read the full, original story: Cleveland Play House New Ground Theatre Festival opens with juicy genetics play ‘Informed Consent’

Outbreak
Outbreak Daily Digest
Biotech Facts & Fallacies
Talking Biotech
Genetics Unzipped
Video: Test everyone – Slovakia goes its own way to control COVID

Video: Test everyone – Slovakia goes its own way to control COVID

As Europe sees record coronavirus cases and deaths, Slovakia is testing its entire adult population. WSJ's Drew Hinshaw explains how ...
mag insects image superjumbo v

Disaster interrupted: Which farming system better preserves insect populations: Organic or conventional?

A three-year run of fragmentary Armageddon-like studies had primed the journalism pumps and settled the media framing about the future ...
dead bee desolate city

Are we facing an ‘Insect Apocalypse’ caused by ‘intensive, industrial’ farming and agricultural chemicals? The media say yes; Science says ‘no’

The media call it the “Insect Apocalypse”. In the past three years, the phrase has become an accepted truth of ...
globalmethanebudget globalcarbonproject cropped x

Infographic: Cows cause climate change? Agriculture scientist says ‘belching bovines’ get too much blame

A recent interview by Caroline Stocks, a UK journalist who writes about food, agriculture and the environment, of air quality ...
organic hillside sweet corn x

Organic v conventional using GMOs: Which is the more sustainable farming?

Many consumers spend more for organic food to avoid genetically modified products in part because they believe that “industrial agriculture” ...
benjamin franklin x

Are most GMO safety studies funded by industry?

The assertion that biotech companies do the research and the government just signs off on it is false ...
favicon

Environmental Working Group: EWG challenges safety of GMOs, food pesticide residues

Known by some as the "Environmental Worrying Group," EWG lobbies for tighter GMO legislation and famously puts out annual "dirty dozen" list of fruits and ...
m hansen

Michael Hansen: Architect of Consumers Union ongoing anti-GMO campaign

Michael K. Hansen (born 1956) is thought by critics to be the prime mover behind the ongoing campaign against agricultural biotechnology at Consumer Reports. He is an ...
News on human & agricultural genetics and biotechnology delivered to your inbox.
Optional. Mail on special occasions.
Send this to a friend