China rolls out legal protections on the genetic data of its citizens–with troubling exceptions, say ethics experts

Credit: Catherine Tai
Credit: Catherine Tai

The Chinese government has identified genetic data as a national strategic resource and is strengthening state control over the country’s gene banks and other repositories of genetic information.

Why it matters: The collection and use of genetic information are fraught with ethical concerns, including consent and privacy, exploitation of marginalized groups, and a growing transnational trend toward genetic surveillance.

“The Chinese authorities are making a real effort to protect the genetic information of Chinese citizens from non-state actors,” Yves Moreau, a geneticist at the University of Leuven in Belgium, told Axios, while carving out a “huge exception for the state.”

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Other countries, including the U.K. and the U.S., have created large databases of genetic and health information from hundreds of thousands of participants, but China’s new rules suggest a new level of governmental control on genetic information.

“It’s natural for any state to consider genetic information something strategic. But this is going very far, saying that the state will be the central judge of how we manage this kind of information, both internationally and nationally,” Moreau said…. “It comes from a philosophy that seems to be quite strong right now in China as viewing genetic resources as a strategic resource. Like ‘data is the new oil’ — genetic data is one of those things”.

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