Evan Serrano, of Arizona, has a rare degenerative disorder called Friedreich Ataxia. At least, that’s what doctors think. But Evan’s insurance company won’t pay for the genetic testing necessary for doctors to properly diagnosis him. Evan’s insurance company cites the AHCCCS Medical Policy Manual which states, “Genetic testing is not covered to determine specific diagnoses or syndromes when such diagnoses would not definitively alter the medical treatments of the member…AHCCCS can only pay for services that will help you get better (medically necessary).” Now, Evan and his family are left to wonder what’s wrong with him, and if there is a cure.
View the original article here: Diagnosing Evan: State statute on genetic testing has local boy’s future in limbo – KVOA Tucson News
