In todayโs high-tech world, our privacy concerns typically revolve around usernames, passwords and PIN numbers. But one piece of personal data has been overlooked until recently: your genetic information.
Our genomes represent unique biological identifiers, distinguishing us from others. Each of the cells in our bodies contains and protects information encoded in our DNA, collectively known as our genome.
Because each personโs DNA is unique, privacy becomes a major issue. When a personโs DNA is used for sequencing, although clinicians are only interested in certain genes known as โmarkersโ for a disease, they have access to a personโs entire genome โ including genetic information outside the bounds of a particular disease. Who should have control and access to this information?
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