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Genetic Information Nondiscrimination Act under scrutiny

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This article or excerpt is included in the GLP’s daily curated selection of ideologically diverse news, opinion and analysis of biotechnology innovation.

The following is an excerpt.

Researchers from the Whitehead Institute in Boston have sparked a vigorous debate since the publication of their study in Science showing that they needed only a computer, an Internet connection, and publicly accessible online resources to identify nearly 50 individuals who had submitted personal genetic material for genomic studies.

“What we lack in this country is a comprehensive genetic privacy law,” Jeremy Gruber, president and executive director of the Council for Responsible Genetics, told GEN. “[The Genetic Information Nondiscrimination Act] has significant limitations in terms of its comprehensiveness, and I think we need to have an appropriate national discussion to talk about how we’re going to actually govern the access to and use of genetic information across a variety of platforms.”

Read the full article here: Genetic Information Nondiscrimination Act under scrutiny

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