The following is an excerpt.
Researchers from the Whitehead Institute in Boston have sparked a vigorous debate since the publication of their study in Science showing that they needed only a computer, an Internet connection, and publicly accessible online resources to identify nearly 50 individuals who had submitted personal genetic material for genomic studies.
“What we lack in this country is a comprehensive genetic privacy law,” Jeremy Gruber, president and executive director of the Council for Responsible Genetics, told GEN. “[The Genetic Information Nondiscrimination Act] has significant limitations in terms of its comprehensiveness, and I think we need to have an appropriate national discussion to talk about how we’re going to actually govern the access to and use of genetic information across a variety of platforms.”
Read the full article here: Genetic Information Nondiscrimination Act under scrutiny
