NIH’s HeLa agreement embraces an expansive definition of familial genetic consent

The NIH has announced an agreement with Henrietta Lacks’ descendants to obtain their consent for access to and use of the HeLa genome (the agreement applies only to NIH funded research, but the hope is that others will agree to it as well).

I think the NIH handled this reasonably well.

However, there are some issues raised by this case and this decision that warrant further discussion. Exactly when, and under what conditions, should someone’s heirs be able to consent on their behalf? And how do we deal with the genetic privacy issues?

Read the full, original story here: With Its HeLa Genome Agreement, The NIH Embraces A Expansive Definition Of Familial Consent In Genetics

Outbreak Daily Digest
Biotech Facts & Fallacies
Genetics Unzipped
Infographic: How dangerous COVID mutant strains develop

Infographic: How dangerous COVID mutant strains develop

Sometime in 2019, probably in China, SARS CoV-2 figured out a way to interact with a specific "spike" on the ...

Philip Njemanze: Leading African anti-GMO activist claims Gates Foundation destroying Nigeria

Nigerian anti-GMO activist, physician, and inventor pushes anti-gay and anti-GMO ...
News on human & agricultural genetics and biotechnology delivered to your inbox.
glp menu logo outlined

Newsletter Subscription

Optional. Mail on special occasions.
Send this to a friend