Sixth grader’s expulsion from school prompts genetic discrimination lawsuit

Human genome
Image via Guardian.

The GLP aggregated and excerpted this blog/article to reflect the diversity of news, opinion and analysis.

A few weeksย into sixth grade, Colman Chadam had to leave school because of his DNA.

The situation, odd as it may sound, played out like this. Colman has genetic markers for cystic fibrosis, and kids with the inherited lung disease canโ€™t be near each other because theyโ€™re vulnerable to contagious infections. Two siblings with cystic fibrosis also attended Colmanโ€™s middle school in Palo Alto, California in 2012. So Colman was out, even though he didnโ€™t actually have the disease, according to a lawsuit that his parents filed against the school district. The allegation? Genetic discrimination.

Yes, genetic discrimination. Get used to those two words together, because theyโ€™re likely to become a lot more common. With DNA tests now cheap and readily available, the number of people getting tests has gone way up โ€” along with the potential for discrimination based on the results. When Colmanโ€™s school tried to transfer him based on his genetic status, the lawsuit alleges, the district violated the Americans With Disabilities Act and Colmanโ€™s First Amendment right to privacy. โ€œThis is the test case,โ€ says the Chadamโ€™s lawyer, Stephen Jaffe.

To experts in genetics law, four letters are conspicuously missing from the legal wrangling: GINA, or the federal Genetic Information Nondiscrimination Act of 2008. GINA bars genetic discrimination in just two cases: employment or health insurance. That obviously doesnโ€™t include getting education and housing and plenty of other situation where discrimination might happen.

Read full, original post:ย DNA got a kid kicked out of schoolย โ€” and it’ll happen again

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