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Viewpoint: Consumer tests are ‘neither safe nor private’

| | January 15, 2019

This article or excerpt is included in the GLP’s daily curated selection of ideologically diverse news, opinion and analysis of biotechnology innovation.

As millions of Americans sat down to Thanksgiving dinner, the biomedical researcher James Hazel sent out a stark warning about the genetic-testing kits that he surmised would be a hot topic of conversation.

Most of them are neither safe nor private.

Hazel reached this conclusion after reviewing the privacy policies and terms of service of nearly 100 genetic-testing companies that offer their services directly to people.

His article … in the journal Science, found that nearly half lacked even a basic privacy document that governed genetic data.

Privacy isn’t the only concern that experts have with consumer genetic tests. In addition to collecting sensitive data on ancestry, companies like 23andMe claim to show how your DNA affects your health. But clinicians, medical professors, and genetic counselors told Business Insider that this information is misleading and could put people at risk of missing warning signs for diseases like cancer.

Related article:  DNA ancestry tests are not ‘crystal balls’—they’re approximations

Experts agree it’s time for a different model, something between a pricey doctor-ordered test and the limited spit kits available in drug stores. And though several companies are trying new approaches, none has emerged as a leader. In the meantime, sensitive customer data is being uploaded and housed in large databases — sometimes forever.

Read full, original post: Genetic testing is the future of healthcare, but many experts say companies like 23andMe are doing more harm than good

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